Thymoma
log
old news you missed
updated:2009.10.11
old news you missed
updated:2009.10.11
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Thymoma
log
old news you missed updated:2009.10.11 |
2009.6.1 since we lost our old forum I created a social network group instead of a forum with google (works the same just more features) Just click on forum an you go there.
2009.5.30 I just found out that:
RapidForum.com (our forum host) will be shut down forever on 1.6.2009!
Sorry they have no way that I can transfert the forum to another server, so all forum entries will be lost.
will be updating thymoma.de in a short while, we had a major personal shock (nothing medical) last fall and I have still not recovered from it.
joe
2008.9.17 We have now over 300 pages and over 20 Mb of data for you available.
2008.08.15 12 Years later (click on your hostess to read)
2008.7.22 Over 130 new entries in the thymoma database VIII
2008.5.23 Steve
2008.1.7 We have now more than 20 Mb of information available here to support you.
2008.1.1 52 new entries
in the thymoma database VII
207.11.11 Pericles
2007.10.25 Jean Nicolas
2007.9.5 76 new entries
in the thymoma database VII
2007.8.15 11 Years after Evas surgery
2007.6.21Eva and I moved to the Canary Islands, and we are
back on-line.
2007.5.20 Kimberly
75 new entries in the thymoma
database VII
2007.5.4 Paul
2007.4.29 Theresa
2007.3.29 updated thymoma personal and TSG
2007.3.26 Updated 10 years thymoma
de
2007.5.10 Eva and I are moving to the
Canary Islands, we will be off-line from June.
2007.3.26 Fixed a not working e-mail
address in the querries.
2007.3.12 10 years thymoma de
2007.3.11 thymoma.de/org is now 10 years on the net to
share information and give hope to thymoma patients around the world.
p.s.
if you click on 1997.3.10
(right bottom corner of the start page) you see how thymoma.de has changed over
time.
My
10th birthday
Over ten years ago I have been
diagnosed with an invasive thymoma, stage 4A. I'm very happy to tell you that
I'm cured since 5 years and that I never had to face a recurrence.
I think I'm especially lucky because ... read more
... I would be happy to educate anyone about glyconutrients because I have seen no disease condition that did not respond in a favorable way when they become part of the diet. Directly because of glyconutrients, Dale got two extra years of great life --not bedridden or decrepit and the value of that alone cannot be measured. ... read more
2007.2.15 Over 80 new entries in the thymoma database (see thymoma information).
2007.1.25 read Anne's caregiver story
2007.1.24 Finally we are back on the net and are able tu update thymoma.org
again
2006.10.27
Geoff died September 22.
2006.9.23 Going to Spain for some time and
will be hard to reach, use the forum to talk to other thymoma patients.
2006.9.11 forum back online
2006.7.27 93 new case studies added to the 2006 database.
Your
web hostess (click
on her picture for more info)
is getting near her 10 year thymoma aniversary. The surgery was August 15. 1996.
New e-mail address.
2006.3.5
The rate of survival seems higher than we thought!
Thymoma and Myasthenia Gravis: A Clinical
Study of 1,089 Patients From Japan
BACKGROUND: The thymus or thymoma plays a role in the pathogenesis of myasthenia
gravis (MG). Although previous studies . . .
RESULTS: . . . The 5-year survival rates for thymoma with and without MG in
stage III were 85.7% and 89.3%, respectively; and those in stage IV were 85.1%
and 63.9%, respectively.
To read the whole article
use the Search button on the main page! Search for 1,089
On the page use Ctrl+F and find 1,089
2006.3.17 Going to France for some time and will be hard to reach.
2006.2.2 Major update
- Over 600 new case studies in 4
databases added.
- Dr. Loehrer's thymoma research 20
studies
- Thymoma
Info 2006
2006.2.8 Low-Fat
Diet Does Not Cut Health Risks, Study Finds
2006.2.5 just4fun
2006.2.2 Major update
- Over 600 new case studies in 4 databases added, see thymoma
information
- Dr. Loehrer's thymoma research 20 studies
- Thymoma
Info 2006
New e-mail address.
2006.1.9 Personal update
2006.1.4 Jill
... and on a personal note, your smiling hostess to the left is going through
a rough time since mid December and we can tell you, that the thymoma operation
and the lifetime dosis radiation still take a heavy toll on her. When I get
myself together, I will post an update. Joe
2005.11.20 We wish all patients and their caregivers a peaceful time and may
your health wishes come true. Joe
2005.10.17 Megan update
2005.9.2 Patricia Darlene
Elizabeth Steve
2005.7.10 Susanne 
2005.5.27 to serve the global neighborhood better we aquired thymoma.org
as our new main domain. thymoma.de will be online
simultaneously.
2005.5.26 Steve
2005.4.26 Brigitte
2005.4.6 see thymoma personal for updates.
2005.3.10 We are here for you since 8 years, so happy birthday thymoma.de and
the best wishes to all who visit the website in search of help and hope.
2005.2.16 In the last weeks I noticed an increase in new thymoma cases in our
forum. Starting right now we are offering most of our
thymoma support group benefits to all thymoma patients free of charge. So send
us your data and we share it with the world on thymoma.de
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2005.1.14 I like to begin the new year with an info of hope. Days ago we got mail from Dale, who statistically should not be around any longer. We would love to share this mail with you, just look at his data. Oh, and we have now only 2 laptops left.
A big THANK YOU to all who helped us to stay online during 2004. I don't know how long we will be able to come up with money out of our own pocket to keep the biggest thymoma resource on the net running but we will try. Even if you can donate just 10$, every donation helps.
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2004.12.08
The laptops what are left are actually a bit more modern than the NEC
shown in the picture, and now we have only 3 left. 2004.9.21 Updatet thymoma info
Follow-up care: Relapse after primary therapy for thymoma may occur after 10-20 years. Therefore, long-term follow-up probably should continue to be performed throughout the patient’s life. 2004.9.20 I found an interesting article @ eMedicine about the different medication options. 2004.5.21
Dr. Loehrer Studies Iressa
for Thymic Cancers. More about
Iressa 2004.3.10 7 years thymoma.de
2004.3.10 hiermit möchte ich Sie ganz herzlich einladen, an einem Symposium
über " Diagnostik und Therapie von mediastinalen Tumoren"
teilzunehmen. Dieses Symposium findet am 6. März 2004 in Hannover
statt. Es werden namenhafte Referenten zu den einzelnen Tumoren über die
Über Ihre Teilnahme würde ich mich sehr freuen, für heute
verbleibe ich mit herzlichen Grüßen Prof Dr Dr Macchiarini
2003.5.15
Well, it is not us, we get nearly no feedback and there are no new cases
or new info. 2003.3.14
It would be really nice, if we could get some updates on how you are doing! 2003.3.10
There is a fine new way to do your research on the internet. Just check
it out here
and set the delay (turtle) to a time you like (30 sec or so). 2003.2.3 All thymoma back up pages are offline and will stay that way. 2003.2.2
thymoma.de started as a very personalized website and has evolved to the
world number 1 resource for one of the rarest cancers, the cancer of the
thymus, the malignant thymoma and the thymic carcinoma. Since Sue, who
started this page, is now over 6 and a half year free of the thymoma it
is time for her to step out of the spotlight of thymoma.de and back into
the life.
2003.1.17
2002.11.16 21 new database entries 2002.11.3 Happy Birthday Joe!
2002.10.21
Janelle, an MG story from Australia 2002.10.19
Wow, running thymoma.de is just a bit more expensive than we projected.
2002.10.15 Well, time flies when you are having fun, tomorrow Sue
will hit her 43rd birthday. I still remember how happy she was to make
the 40. The years sure count different if you have / had cancer. 2002.9.3 Due to Sue's condition
we will be able only to answer mail for members
of the Thymoma Support Group.
For all other users of thymoma.de please use the forum
to communicate. Sue needs my full attention and I keep you posted via
this website. 2002.9.1 9 new cases in the database. 2002.8.26 2002.8.22 Bea
hat uns einen interessanten Artikel über Magnetflüssigkeitshyperthemie
geschickt. 2002.8.13 Automatic translation of the German
People's data is online here
just click on the US flag
2002.8.7 6 new cases in the database 2002.8.5 I am kind of pissed, we are trying
to find a doctor for Sue to help her immediately, but waiting times are
from 3 weeks to 2 months. Well, do not get sick in our part of the world.
(it is kind like the hillbilly part in Texas) 2002.8.1 Deutsch / English 2002.7.30
2002.7.17 2002.7.11 Danke Bea & Urs! Doppelklick
mal auf das Bild. Lautsprecher einschalten! 2002.7.6 20 new cases in the database 2002.7.3 2002.6.28 check out quackwatch 2002.6.27 2002.6.24 I will create a new section here
only for the caretacers to exchange information. 2002.6.13 Got thymoma? Go talk to the #1
thymoma specialist in the world. 2002.6.11
2002.6.7 I just heared, that the company which hosts
thymoma.de is going
down the drain. In case you are not able to connect to thymoma.de,
please bookmark our backup address: 2002.6.6 2002.05.11 2002.3.25 Sue and Pooh with a message for you: 2002.3.22 What you need to know 2002.3.21 2002.3.10 Thymoma.de celebrates 5 years of service for the people.
2002.3.04 2002.3.02 2002.2.10 2002.1.30
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2002.8.16
Can you belive it? Sue had her 6th birthday yesterday and we forgot
all about it. We were so busy unraveling her past and working through
all the details...
2002.8.9
2002.7.28
2002.6.8
into a 3d sculpture 
as a token
of appreciation for her 5 year service to the cancer community.